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Rare disorder

Youngster denied many of the foods kids love

October 17, 2013

WARREN TWP. — What child could turn down a snow cone during an end-of-school party? Six-year-old Presley Cunningham could. And did....

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(4)

Kendall78

Oct-21-13 8:04 PM

What's with the disagree?

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Kendall78

Oct-18-13 2:35 PM

@Loves- While it would be nice if there could be a cure for galactosemia, it is highly likely that Presley will just have to stay on a restricted diet and maybe take medication that can fill in the nutritional gaps that diet causes.

Since it's a genetic condition (like my wife's PKU), it can't be cured. It would be like curing a redhead of their red hair...it's a part of their genetic makeup.

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Kendall78

Oct-18-13 2:31 PM

At least we live in a time where such disorders can be studied and more people can learn about them. My wife has Phenylketonuria (PKU) and she is in the same boat. Most people don't know the condition and very few doctors seem to know much about it. Rampant bad info across the board about PKU and no organization that can really help much.

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LovesBuckeyes

Oct-18-13 1:37 PM

May there be a cure for this rare disorder. And best wishes to Presley! What a strong-willed, wonderful little girl!

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